White Paper on Rare Diseases and Orphan Drugs

The White Paper on Rare Diseases and Orphan Drugs is the result of a joint effort by the P-BIO Working Group on Rare Diseases and AIBILI – Association for Innovation and Biomedical Research on Light and Image, with the participation of fifteen specialists and with the coordination of Francisco Batel Marques, Professor at the Faculty of Pharmacy | University of Coimbra and Director of AIBILI and Joaquim Marques, Coordinator of the P-BIO Rare Diseases Working Group.

Digital version available here (in PT): Livro Branco das Doenças Raras e dos Medicamentos Órfãos

Date of publication: 2019